Singlewhitediabetic's Blog

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Diabetes blog week – Day 5 May 19, 2012

Filed under: Uncategorized — singlewhitediabetic @ 10:18 am

What They Should Know: Today let’s borrow a topic from a #dsma chat held last September. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.

I’m a day late, but hopefully not a dollar short. I’m at a conference for women with diabetes right now. I spent yesterday driving over 6 hours and then meeting new people, so was short on time. Today I’m taking a 45 minute break and then headed back down. More to come post-conference!

For this topic, what comes to me most is just to share that thinking about diabetes takes up a lot of my time. Do I need to test? Am I high or low? How many carbs are in this? How is that exercise going to affect me? Am I going to have complications? Where can i wear my pump with this outfit? Do I have enough supplies with me for the day? You get the point. On a normal day, I would guess that at least 1-2 of my 24 hours is spent specifically on thoughts about diabetes. On a day when I’m fighting it, it’s more. So, if you wonder why I talk about it so much, that’s why. Nothing I do is a safe zone for me to not consider the d…even sleep.

Okay, I lied about not talking about the conference, but something came up that’s timely with this. Last night after our intro, a lot of us hung out in the hotel lobby/lounge. I ended up in deep conversation with three other ladies – one in her 20’s, one in her 40’s and one in her 50’s (I was covering the 30’s). We shared things that don’t come up often with our friends, let alone near-strangers. At one point, one of my Diabetes Sisters said, "Are any of you ever afraid?" Yes, we admitted pretty quickly, we are all afraid. But, we’re not letting it stop us. We are here, learning more and trying to improve our lives.

So, in summary…it’s a big deal to me.

 

diabetes blog week – day 4 May 17, 2012

Filed under: Uncategorized — singlewhitediabetic @ 4:47 pm

Tell us what your Fantasy Diabetes Device would be? Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc. The sky is the limit – what would you love to see?

i would like this devise to reside and my body and act just like my pancreas used to work. sort of like a pacemaker does for the heart. if i have to telephone somewhere monthly and hold the phone to my belly and then be done…that’s cool. 😉

hey, it may be cheating to go that easy, but it is really what i want! oh, and it should come with some pretty jewelry that i can wear that will alert people it’s in my body. probably some rubies and diamonds would help with the alerting….

 

diabetes blog week – day 3

Filed under: Uncategorized — singlewhitediabetic @ 4:22 pm

Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

I have been blessed to have a continuous glucose monitor (CGM), but I just haven’t committed to wearing it and keeping it with me.

What would i get?  Mega-info.

Why I don’t:  it’s one more thing to have in my tummy and to have to carry around.

It’s really as simple as that.  I have been going HIGH overnight though so know i need to just do it before the supplies i have expire…

 

Diabetes Blog Week – Day Two May 15, 2012

Filed under: Uncategorized — singlewhitediabetic @ 3:08 pm

Today’s Prompt:  Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well!

What do I do spectacularly?  That’s a harder question than I thought it would be.   There are things I do…check my bg multiple times a day, stay stocked up on supplies, treat my lows and highs, carb-guess, take my medicines and so on.

I am going to go with – seeing doctors and speaking up!  I, generally, keep the following appointments in one year:
–Endocrinologist 3-4 times
–Eye doctor – 1 time
–Dentist – 2 times
–Podiatrist – 1 time
–Gynecologist – 1 time
–Retina Specialist – 2 times
–On demand – as many times as needed

When I see these guys and gals, I try my best to speak up and be honest even when I know the answer might earn me a lecture or a frown.  I review my blood work and ask questions.  I try to stay educated on all of the things they should be looking at and understanding it as well as I can.  I don’t have any desire to become a doctor of any type, but I want to understand my body.  Ultimately, regardless of what they tell me in our 10-60 minutes together, I’m the one that has to do the work the other 99% of the time.  Niether of us are perfect, but it’s most important that I do my best with what I know.

Spectacular.  🙂

 

Diabetes Blog Week – Day One May 14, 2012

Filed under: Uncategorized — singlewhitediabetic @ 11:35 am

I have been such an absent blogger that I almost missed the start of Diabetes Blog Week.  Eeke!  Luckily, I didn’t.

Prompt:  Click for the Find A Friend – Monday 5/14 Link List.
It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today!

About a year or so ago, my blog reader was retired and I didn’t like the replacement…so I mostly stopped reading them unless I see posts from my Facebook friends/pages.  So I think what I’ll get more from this week is finding the new friends and great reads as I take it up again.  Any reader suggestions on blog subscriptions?

While this is an already popular spot, the Blog that most recently touched me was Lee Ann’s post at the Butter Compartment – http://www.thebuttercompartment.com/.   She wrote about a subject near and dear to my heart…but you’ll have to check it out to see what I mean.  😉

 

 

My new diabetic “helper” December 9, 2011

Filed under: Uncategorized — singlewhitediabetic @ 10:53 am

I have put on a lot of weight since I was diagnosed with diabetes. Part of it was weight I had lost that I think was caused by becoming diabetic before diagnosis (I lost 60 pounds the year before I was diagnosed). However, it was just becoming clear that I needed to work on it and needed some external help because I wasn’t figuring it out on my own and programs like WW aren’t really targeted to diabetics. I could make a list of other excuses, but the main thing is I was a little at loss on where to start and what to do. Not that I didn’t get the idea of fewer calories in than burned, but…I didn’t want to just start a diet, I wanted some one-on-one advice.

So after much research I found a nutritionist/dietitian who also has a specialty in diabetes. I started meeting with her in October/November. I love it.

First, I had to start documenting everything I eat/drink. For this I’m using http://www.myfitnesspal.com. I can do it from my computer or my phone. It has an awesome database of foods. Every visit we review my logs (including what time i ate each meal/snack and how I was feeling in the notes section). We also try to come up with a plan ahead of schedule. I’m finding that a plan is the key to success. However, there have been other lessons.

I was not eating breakfast at least 95% of the time. And on days that I work from home I might not eat until 3 or 4 and I was really starving. Thus, my body thought it was starving and would hold on to every calorie I took in. The breakfast thing was partly because so many mornings I was waking up feeling nauseous. At first I thought this was from high bg, but after disproving that I think it’s acid reflux. Sexy! I have started taking over the counter meds and it’s been a big help. I’m up to have a diabetic-friendly Boost for breakfast on my way out. The other part of this was discovering I wasn’t keeping food at home I would want to eat. I don’t mean like pizza and chocolate, but just keeping something crunchy and some things that are easy meals – like tuna fish and crackers.

She also reviews some things I’m doing and has simple changes. Like have a fruit or vegetable with every meal. If you are ordering out, make a veg at home too. Set a limit to drinks before going out with friends.

I’m also trying out more cooking at home. Wish I had a dishwasher! I am trying to always do at least enough for dinner and then lunch the next day when I cook. Some things like soup I’ve also frozen some servings for later. I need to do more of this kind of thing, but the progress I’ve made has been good. My lady likes pictures of my food. I don’t photograph them all, but things like a beautiful soup deserve a picture!

She’s also very encouraging. She’s checked in by email a few times between visits. My favorite email was short and sweet: “I’m really proud of you, too. Losing weight and taking care of yourself is never easy… keep it up.”

I can do this!

 

Diabetic Retinopathy December 7, 2011

Filed under: Uncategorized — singlewhitediabetic @ 9:22 pm

It’s amazing how depressing doing research can be when you’re diabetic.

 One of the first things I was told was I should get a dilated eye exam annually once I was diagnosed.  I have had glasses since I was 11, so seeing the eye doctor was no new thing.  However, this does add some time.  Regular eye exam:  better 1, better 2 + the drops.  Then you are released to wait for half an hour in the waiting room and then brought back in.  This past July the eye doctor saw some “scarring” that made him refer me elsewhere.  

Lovely. 

So, in July I went to a specialty clinic.  It was a horrible experience.  I will add my mom had surgery the day before and I had a call immediately before that things weren’t great so my eyes were bloodshot to begin with.  So I went and got dilated.  Waited.  Decided I should be more dilated.  (I have large eyes). Then I went back to get photos taken…the person missed my vein completely and just filled my arm with yellow dye.  Then I went into an exam room for a while.  I finally saw a young doctor.  She gave me her opinion.  I waited an hour to see the more experienced doctor for him to repeat everything and then ask about my diabetes.  “You should never go above 130,” he said.  

Insert dragon head here and fire with “YOU KNOW I’M A TYPE 1 DIABETIC, RIGHT?””  

Yep.  Um…even if I have the most perfect numbers I rise more than that number from just waking up, getting ready and going to work…no food…

It really turned me off.  So much so that I put off the follow-up exam for a month longer than was suggested.  This time, it was annoying but no dye in my arm and an hour less time.  He did ask about my diabetes again and I said I had gotten the Dexcom and was mostly under 200 (which would be AWESOME, bells in Heaven AWESOME) and he said “we really need you to stay under 130.”  

So do I do/say something?  This is obviously absurd.  

Oh, the second eye exam they said the pocket of fluid was gone and my eyes look great.  Though when I asked if I could switch to coming annually after one more check he said “people like you should come at least every 9 months.”  People like me are diabetic.